
The love, strength and
selflessness of Athina’s parents, who live in France, close to Monaco and whose
daughter suffers from ichtyosis, have generated a spontaneous voluntary help
group to give them assistance and support.
The joint action of the family and voluntary helpers gave rise to a strong idea
: to give Athina the opportunity of a real life.
The Engine is due to a fortuitous meeting, in
March 2004, of the mother of Athina with Flavie FLAMENT, TV show wowan .
This day of March 2004, the mother of Athina walked her daughter in her
maxi-cosi. Flavie FLAMENT, accompanied by her husband Benjamin GASTALDI and
their child named Enzo, passed by there, the chance, a fortunate
coincidence. The conversation began and Flavie FLAMENT too. She promised this
day there her total engagement and her assistance as well for the constitution
of an association as for its promotion. In the TV hebdo of 18 to 24 July
2004, joined to tens of regional daily newspapers whose Nice-Matin, an interview
was devoted to her." With the question " Which would be your secret
garden, to take again the title of a number of Sagas? " she answered: " For
the dream, it would be the diving. For the more useful things, I would have
asked for a subject on the association which I assemble with the mother of
Athina, small girl a 7 month old affected by a genetic disease, a ichtyose of
the Arlequin type, which causes a permanent exfoliation of the skin. I crossed
them by chance in the street and it was a sunbeam in my life. I took a sublime
slap and I found which utility could have my public image. "
She renewed this engagement in France Dimanche (n° 3021 - week of 23 to
July 29 2004): "... Because a new child upsets the life of Flavie today! This
child is called Athina ".
And this slap did not remain without effect, since Flavie encouraged the creation of the Association which quickly found its 10 founder members. Today, Flavie thus launches out in this new combat. A fight counters the disease, for Athina, of course, and for all the other children affected by like her. By agreeing to be godmother and ambassadress of this association, the young woman wants to try to return a little happiness that the life offered to her: " I found which utility could have my public image ", she still says, with frankness and humility...
The
Goal
of the association is clearly defined in the remarks of Flavie FLAMENT: a fight
against Athina’s disease, for Athina, and all the other children affected by ichtyosis.
A scientific council will determine the type of research and the centers best
adapted to this task. For 3 years of research, in one center, the budget is
about 250.000 to 300.000 euros. It certainly is a large amount of money, but
it seems very small, considering the life of a child and of hundreds of other
children. No obstacle can discourage those who are already involved or will be
involved in the battle for Athina.
The
statutes were deposited on October 5 2004 near the Department of the Interior to
the Ministry of State of Monaco.
Association was authorized and the statutes approved by the ministerial decree
n° 2004-597 of December 10 2004.
The Assembly constitutive naming the administrators and the Board of directors
allotting the various positions were held on January 12 2005.