PRACTICAL LIFE (page 3)
MESSAGE OF THE PARENTS OF ATHINA.
To make contact, as soon as possible, with associations and families brings an assistance to all the levels, advices and small tricks of the ones and others, administrative steps and more still moral support and hope.
With the birth of Athina, we had not thought of this opportunity. One needed the insistence of our entourage to take the first steps.
When we could meet children and adults affected like our daughter, then old of two months and half, the contact was painful. We had the hope that with time the disease grows blurred and even disappears. Hope encouraged by the vision of Athina, which after the care, bath and pomade, had an almost normal appearance.
Reality, vis-a-vis with us, destroyed our illusions based on the imaginery one or simply created by our love for our daughter.
To accept the disease without hope of cure for his/her child is an extremely
difficult and painful test. But, with the passing of time, we think that more
quickly one becomes aware of it, more quickly one is ready to face the daily
difficulties. In addition, these meetings enabled us to better manage the
disease, to know young people and less young people living almost normally with
their handicap, to give us the force to fight to create a new hope, that of
research who one day, we are persuaded of it, will allow to look after, to
eliminate, this terrible disease.
