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On September 24, 2010 will be organized one day "Special Ichtyose".
During this day, a conference will be given on the projections of
scientific research and private clinic concerning this disease. It
will be held in the room "Lou Clapas" of the Hospital Princess
Grace of Monaco and will start at 4 p.m.
The conference will be addressed more particularly to the doctors
and to the medical personnel of Monaco and the
Alpes-Maritimes. The principal laboratories to which we give our
financial support will take part in this event what will enable them
to give informations on the result of their research.
Our annual dinner will close this day, to 8 p.m. at the Restaurant the
Saint-Benoît .
"Ecole des Révoires" in Monaco organized a great
annual stock sale from the 9 to last 25 June with the profit of our
Association. During the handing-over of the cheque by the director
of the establishment, Athina which is provided education for in this
school and its Mom answered the questions put by a panel of pupils.
Here a very beautiful integration. (PHOTO)
The Center of Reference of the Rare Diseases of Skin
(CHU of Toulouse) organise on next 8 June one afternoon of
conferences. To read
L'ICHTYOSE - Qu'est ce que c'est? on FACEBOOK. Guillaume MANEUF does a remarkable work on the behaviour of this website with much of testimonies and informations. To discover
The review "Trait d'Union" of the APEM published, in its last number,
an
article on Athina and its disease.
To read.
Seminar SDPHN 2010
Hospital Pediatric Dermatology seminar" "Necker-kids sick" will take
place on Friday, June 11 2010 at the Maison de la Chimie Paris.
This seminar in the Pediatrics and the dermatology caters especially
to dermatologists, liberal paediatricians or Hospital, general
practitioners, pharmacists, nurses and internal.(http://www.sdphn.com)
Last 14 January, the Board of
directors of Ladies Lunch Monte-Carlo, whose President is Mrs. Cécile De
Massy, gave to our Vice-President, Mr. MESSECA Victor, a consequent
cheque. Thank you Mesdames (photo)
RACE SPIRIT. Fabien Debaucheron gives
a direction to its competitions by supporting our association,
read the interview.
Our invitations to tender for
research were stripped and 5 research centers were indicated to share
the sum of 148.800 euros. The cheque was given to Professor LACOUR at
the time of the annual evening of Association.
(Photo)
Report of Professor HOVNANIAN of the 1st year of research with the funds which we had given to the research Laboratories (article)
2007 2 May, we reached part of our goal: to give 165.000 euros for research on the ichtyosis. This handing-over was made in the presence of professors BODEMER, HOVNANIAN, LACOUR and Doctor ZAMBRUNO. (article)
The newspaper " Nice-Matin " reports, in its article of November 20 2005, a testimony on the ichtyose with the following title " Athina, the disease on edge ". (see article)
